My Dairy
Hello everyone, I feel really tired and exhausted. Thursday and Friday those huge and scary things or machines that doctors use were vacuuming out my blood to separate the stem cells. Doctors were watching me all the time because those machines are really powerful, and I am still a little girl, and this procedure was a super risky one. They could have taken out too much blood, those two days I couldn’t get off the bed, because I was connected to the IVs and the blood bags. And that’s not all. Friday night they started my third chemo session. This time they are giving me two very strong medicine combinations, and doctors told us before that it will be really hard on me. Every two hours they are checking to see if my kidneys are functioning fine, because those medicines have really huge side effect on the kidneys. It’s the second day that I can’t eat anything because i feel really nauseated, and I am really moody. I feel really weak and I don’t know what i want anymore. This whole week my daddy was carrying me on his hands, it’s good that he is so big and strong, I just can’t imagine how my mommy is gonna be doing the same…
And then I want to say to everyone have a good Thanks Giving and tasty turkeys. Thank you for your support.
November 15th, 2008
And here comes another week.. I feel much better, than the doctors said I would. This whole week I spent at home because I didn’t need the hospital, I felt happy, fun, playful, and only sometimes really tired. I ate everything I put my hands on, and I was a really good girl as well. Just that Thursday my blood wasn’t as well, so i had to go to the hospital, again, Friday. Just to fill in some good blood for me. This upcoming Thursday there’s going to be a more difficult procedure. Doctors want to take out my stem cells from the blood bone marrow and freeze them, so after all the chemo therapies are done they can put them back, in other words transplant them. That means i will have to be with extra care, and far away from all the outside bacterias, so I don’t get really sick. I won’t be able to even leave my bed! I really don’t know how is my mommy going to keep me away from everything. Once again thank you everyone so much for all of your caring and charity, you all are really important to me, and you all help me a lot! Thank you for your support!
Here goes another week and I feel perfectly fine. Just that Wednesday night we had to rush out to the hospital, since my fever went up really high, and it scared us like crazy. Once we got to the hospital the scary doctors did all the tests to me again to see what was going wrong, and the result was that my blood was out of the white blood cells, that’s why my immunity system wasn’t as strong, and i got the fever. But still I am an amazing girl! All doctor’s are surprised how well I am doing, since they don’t know how much all of your prayers are helping me survive. The upcoming week I have another chemo cycle, but i will be okay. It’s just important that no bacteria attacks me, so I don’t get sick, but my mommy really watches out for me, we don’t even let guests in, just talk to them on the phone, so i don’t get a flu or something from the outside world. Thank you so much for your warm hearts and feelings, talk to you later…
October 31st 2008, Friday
Hi, it’s me again! Today ended my second chemo therapy treatment. It went much better, than the first one, I think it’s because all the nice people are praying for me and wishing me a lot of strength to fight this horrible disease. Just today I don’t really feel that good; I didn’t even eat my favorite ice-cream. Today is Halloween, my mommy dressed me up in Mickey Mouse costume, and I went trick or treating in the hospital, just that I didn’t even want the candy today. I really wanted to go outside today since it’s so warm and nice. I saw my favorite swings while going to the hospital, I begged my mommy to stop ant let me play for a little bit, but she wouldn’t since I can’t go outside and catch any kind of bacteria that would make me sick. It would make me suffer. Oh well, I have another fun attraction at the hospital to ride on the IV stand. I stand up on it and my mommy takes me around the hospital hallways. Maybe the doctors would like to join me in that fun, but they are too big for that. Oh also everybody in the hospital loves my huge blue eyes, I won’t lie they are amazing, and also my funny hats; I keep changing them around couple times a day. It would be alright just that my eyelashes are starting to fall out completely, before it used to be hard for me to blink because they were so big and cute. Now it’s a lot lighter to see, since nothing blocks out the light anymore. The doctors also want to inject some blood to me, I hope not a hyperactive one, or I will make my family go insane once I go home. This time it’s enough, or my hand is getting weaker, I should go rest. Bye bye…
October 24th, 2008
Friday. After the ten days I’ve spent in the hospital, finally they let me go home. It’s the second day that I don’t have any fever, and with all the happiness I can eat. I eat a lot and a lot, of course I need to catch up to the last twelve days when I had nothing to eat. I’m sad, though that I only have three days to rest because Monday I have to go back to the hospital to start the new Chemo session. So I will be going back and forward from home to the hospital for the whole week, but maybe this time I will find an easier way, since I am a really fun and beautiful girl, even without my lovely ponytails…
It’s been a week since my first chemo therapy. I really don’t feel that great, I don’t eat or drink anything at all. I know it’s not good, but I can’t eat anything since my mouth is sore from all the medicine I have to take. Also I have fever all the time; it is probably because my tiny body reacts to chemo this way. Bet I keep hanging on and fight it because my body will need to take so much more, since it’s all just a beginning now. The other day my hair started to fall out, yes I freaked out since my daddy shaved it all off, but I don’t worry because my mommy and my brother Agnius bought me a lot of funny hats. I even can hide from those scary doctors underneath them. That’s how I live so far..
